Andrew is doing great! He is at full feeding amounts now and has only a little bit of IV nutrition that is necessary to keep his line from clotting. They will probably switch the two medications to oral versions and remove his line tomorrow. He is so close to going home that they don't want to risk having an infection from his line. (He's already had two infections from lines.) As you can see he is a very happy kid. He loves having familiar faces around. He behaves best for his primary nurses and his mom. This morning he was very fussy, but when Mom came he was just fine and started smiling at everyone again. He is still on fentanyl (pain med that we're weaning), that is currently given every 3 hours, and ativan (which helps him be calm), every 12 hours. He can come home with the ativan, but we'll need to get rid of the fentanyl. The plan is to stretch the amount of time between doses every-other day. He still spits up, but not as much or as often as he was last week. We're working with him to decrease his gag reflex as well. He even took his pacifier twice yesterday. He did eventually gag and wretch because of it, but he liked it while it was in. That's huge progress for him to have in it at all since surgery.
Tyler spent last week in Ferron with Ryan. I missed him so much and was happy to have him with me again Friday. Grandpa Mel heated the pool and we went swimming!! He loved it as long as Grandpa or I held him. He didn't like when we tried to put him in his floater. He really liked watching other people swim and trying to splash them. He would giggle every time he got splashed and when he tried to splash them back. He's also learned to sit on the edge of the pool to put his feet in. He loves it, although it makes me soooo nervous. He's really not afraid of much, and will try everything. Good luck to Ryan and I keeping track of him this summer. :) He runs very well now too.
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