May 13, 2009


Tyler and I went home again this weekend for a few days. We took Tyler to the park Monday night. It's amazing how fast he is learning and growing. He's always been somewhat fearless, but it's getting even more so lately. He loves being outdoors.




Drew is making progress. It feels very slow for Ryan and I, but slow is good for Drew. He's up to 14 cc's an hour on continuous feeding, which is about half of what he'll need. He's also cut his pain killer dose by half and continuing to wean every other day. He's been much more alert and pleasant without so many drugs in his system.
He still hasn't been very interested in sucking. The therapist and I have been working with him, but with minimal success. Today Kiley got permission for us to try breast feeding to see if he'd be more interested in sucking. He took to it very well. He only tried for a few minutes before he fell asleep, and ended up spitting up because of the extra fluid in his stomach, but he enjoyed it and we're so pleased that he did it. We'll keep working on that. The plan is to continue decreasing meds and increasing feedings through the G-tube and work on oral feeding. We're hoping for just a few more weeks.

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