Drew has still been struggling with terrible reflux. His stomach is very small and he's not been able to handle the extra volume needed to stretch it. We had a test done this week to see how big the stomach is and how much reflux he had. After looking at the results our surgeon decided that he was in need of another surgery to stop the reflux, but his stomach is too small to do the procedure. So Drew will be getting a GJ tube put back in (a tube into his stomach that has an extension to his intestine), hopefully this afternoon. Then he will start getting fed straight into his intestine and once he's weaned off his pain med we can go home!!
He will be fed by a pump into his intestine, but we can also work on feeding him by mouth while he's home. Then when he's bigger and his stomach is bigger he will have the other surgery.
The surgery is called a fundoplication or nissen. The top of the stomach has a piece higher than where it meets the esophagus, and they will take that piece and wrap it around the esophagus and sew it to itself. It will stop his reflux. The down side is that he may not be able to burp and he will not be able to throw-up. The surgery is non-reversible. But Drew will be much more comfortable and will be able to grow and develop normally once he can hold his food down, so it's best to have the nissen.
We're not sure how long it will take to wean the pain med because it all depends on how Drew tollerates it being taken down, but hopefully not more than a few weeks.
Here we come!!
Tyler turned two yesterday. We just had a small party, but Tyler really enjoyed it. I sang Happy Birthday to him when he woke up in the morning. He went upstairs to find Grandma singing, "Happy you. Happy you." He is amazing, and so cute.
He will be fed by a pump into his intestine, but we can also work on feeding him by mouth while he's home. Then when he's bigger and his stomach is bigger he will have the other surgery.
The surgery is called a fundoplication or nissen. The top of the stomach has a piece higher than where it meets the esophagus, and they will take that piece and wrap it around the esophagus and sew it to itself. It will stop his reflux. The down side is that he may not be able to burp and he will not be able to throw-up. The surgery is non-reversible. But Drew will be much more comfortable and will be able to grow and develop normally once he can hold his food down, so it's best to have the nissen.
We're not sure how long it will take to wean the pain med because it all depends on how Drew tollerates it being taken down, but hopefully not more than a few weeks.
Here we come!!
Tyler turned two yesterday. We just had a small party, but Tyler really enjoyed it. I sang Happy Birthday to him when he woke up in the morning. He went upstairs to find Grandma singing, "Happy you. Happy you." He is amazing, and so cute.
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